This journal is for what is going on currently, today, in my and John's life. And my feelings. But for a couple of entries I wanted to share with you some recent events that led up to where we are now, just so everyone will have a little background. Bear with me as I do so. It is part of the story.
John was diagnosed with MDS on June 16, 2005. We will never forget those dreaded words as they came out of the oncologist's mouth. "You have Myelodysplasia." But let me back up for a minute. I am leaving part of the story out.
About a year before the diagnosis of MDS, John was getting a routine blood test. He was constantly getting these tests as part of follow up for the Non Hodgkin's Lymphoma he used to have. The test showed anemia. John wasn't surprised. He had felt so tired and run down for so long. As the months wore on, the oncologist did more tests, and told him that he still had anemia.
Meanwhile, in December of 2004, John proposed to me. We were on cloud nine. With the help of my parents, we were planning a wonderful wedding. We were ecstatic at the thought of spending the rest of our lives together. Our future was so bright.
Then a week before the wedding John had an appointment with his oncologist. He came home and told me what the oncologist said. "He thinks my cancer is back." I thought I had been whacked upside the head with a two by four. I walked around the week before my wedding in a stupor, trying to pretend nothing was wrong, keeping a straight face, because I didn't want my family to find out about it and worry. I wanted to have a joyful wedding and then tell them. It was a very hard thing to do.
The oncologist wanted John to have a battery of tests immediately before the wedding even started, and John told him "no", that he was going to wait until after the honeymoon. We had the most beautiful wedding on the face of the earth, and a fantastic honeymoon, and then returned home to reality.
Okay, this entry has gotten long enough for today. I will finish telling you how John got diagnosed with MDS in the next entry.