This journal is about John. I wanted to keep you all informed about him. It is also about me. I needed a private place to get out my feelings. I have a few close people in my life who don’t accept that I can have feelings, that don’t like me to show feelings; so I am making this journal private so that as I write I don’t feel constantly censored by them, and can write freely. But I wanted to invite each one of you that I have invited. Stay with me if you would like. Or drop in on occasion.
I guess I’ll start at the beginning. John and I met seven years ago, in the summer of 1998. We became very fast friends. Two months later we started dating.
And two months into our beautiful courtship John was diagnosed with Non Hodgkin’s Lymphoma. Stage 3B. I’ll spare you all the details. I’ll just say that he was told it was terminal, but would be given chemo, to live as long as possible, in hopes that a cure for cancer would be found in the meantime. Well, my determined John fought off the Non Hodgkin’s Lymphoma, and has been lymphoma-free for 6 years! He showed those doctors!
But a terrible thing has occurred. The very chemo that wiped out the Non Hodgkin’s Lymphoma gave him a new cancer. Yes, an entirely different, second cancer. It is called Myelodysplastic Syndrome (MDS). It is also known as Myelodysplasia. It is a type of bone marrow cancer.
I would be lying to you if I told you I understood what bone marrow cancer was. I read and reread the definition and can’t understand it. But I am trying to learn as much as I can to help John with his illness, and to help him prepare for his bone marrow transplant he will need in the future. I will write more about the bone marrow transplant soon, but I think this is getting long enough for now.
I hope everyone is in doing ok, love, Krissy