Hi everyone! Here I sit at Hershey Hope Lodge at six something in the morning doing an entry. The computer is fine here, it has been fixed. So now I have a working computer.
There is so much I want to talk to you all about; it has been a long time since I have made an entry. But I don't want to make this entry too long. So I will try to divide the entry over a couple of days. The first thing I want to do, however, is give John's address where he can receive mail. Please send all mail to this address where I am staying, and I will bring it to John while he is in the hospital.
c/o Hope Lodge
125 Lucy Avenue
Hummelstown, PA 17036
I will be receiving mail at the same address, just address it to Krissy Knox.
Now a little bit about what has been going on, and John's schedule. We arrived here at the Hope Lodge on Wednesday. On Thursday John had his chest port put in. He immediately had a problem with it, and we had to go back to the hospital, and he had to get it fixed. Then on Friday, he was admitted to the hospital. He received his first round of chemo. He received chemo on Friday, Saturday, and Sunday. He will get chemo today (Monday) and on Tuesday also. Then they will give him Wednesday and Thursday off. Friday will be the transplant!
Well, that is about the skinny of it. I was going to write a lot more, but I think I will save it for tomorrow, because I don't want this entry to get too long. I will say, however, that John is doing very well. He was sick the first few days of chemo, but yesterday was doing fantastic. He has a very positive attitude, and lives "moment by moment", so that he doesn't get overwhelmed. I will let you know more about how he is doing next time I write an entry.
I am doing fine. Sometimes it is really hard though, especially when I see him sick (like he was during the chemo), and knowing there is not much I can do, except be his cheerleader, and take care of him in any way I can.
Sometimes I have to get away, and not be at the hospital every minute, so I don't burn out. It makes me feel a little guilty, but then on the other hand, I couldn't be any good for him if I was having burn out. So I go for walks around the hospital, and go to the "family lounge", or go downstairs and get a frappuchino at Starbucks. And sometimes I go back to the Hope Lodge and play Tetris or something, lol. John even tells me to leave the hospital sometimes. A former BMT patient told me sometimes that the patients need to be alone sometimes, they need their alone time to heal. To work through some things in their mind. This made sense to me.
Well, I better get off of here. This is getting longer than I wanted it to, lol.
I love you all lots, Krissy :)