Monday, January 23, 2006

John's mailing address

Hi everyone!  Here I sit at Hershey Hope Lodge at six something in the morning doing an entry.  The computer is fine here, it has been fixed.  So now I have a working computer. 

There is so much I want to talk to you all about; it has been a long time since I have made an entry.  But I don't want to make this entry too long.  So I will try to divide the entry over a couple of days.  The first thing I want to do, however, is give John's address where he can receive mail.  Please send all mail to this address where I am staying, and I will bring it to John while he is in the hospital.  

John Knox
c/o Hope Lodge
125 Lucy Avenue
Hummelstown, PA  17036

I will be receiving mail at the same address, just address it to Krissy Knox. 

Now a little bit about what has been going on, and John's schedule.  We arrived here at the Hope Lodge on Wednesday.  On Thursday John had his chest port put in.  He immediately had a problem with it, and we had to go back to the hospital, and he had to get it fixed.  Then on Friday, he was admitted to the hospital.  He received his first round of chemo.  He received chemo on Friday, Saturday, and Sunday.  He will get chemo today (Monday) and on Tuesday also.  Then they will give him Wednesday and Thursday off.  Friday will be the transplant! 

Well, that is about the skinny of it.  I was going to write a lot more, but I think I will save it for tomorrow, because I don't want this entry to get too long.  I will say, however, that John is doing very well.  He was sick the first few days of chemo, but yesterday was doing fantastic.  He has a very positive attitude, and lives "moment by moment", so that he doesn't get overwhelmed.  I will let you know more about how he is doing next time I write an entry.

I am doing fine.  Sometimes it is really hard though, especially when I see him sick (like he was during the chemo), and knowing there is not much I can do, except be his cheerleader, and take care of him in any way I can.  

Sometimes I have to get away, and not be at the hospital every minute, so I don't burn out.  It makes me feel a little guilty, but then on the other hand, I couldn't be any good for him if I was having burn out.  So I go for walks around the hospital, and go to the "family lounge", or go downstairs and get a frappuchino at Starbucks.  And sometimes I go back to the Hope Lodge and play Tetris or something, lol.  John even tells me to leave the hospital sometimes.  A former BMT patient told me sometimes that the patients need to be alone sometimes, they need their alone time to heal.  To work through some things in their mind.  This made sense to me.

Well, I better get off of here.  This is getting longer than I wanted it to, lol.  

I love you all lots, Krissy :)         


  1. Thank you Krissy for the address.  I will be sending you both something in the mail this week for sure.  Love you both...thanks for the update on John and give him a huge hug for us.

  2. Krissy; thanks for the address and the update. Don't feel guilty for the times you have to get away. You do need a break and I'm sure John needs some alone time too. I bet you guys will adjust to it as the days go on. Hugs to you both and always you are in my prayers.


  3. ((((((( Krissy and John )))))) take care both of u. Rache xx

  4. Your health and well-being is equally important, Krissy, and I'm glad you're taking care of yourself by going for walks, etc.  Be sure to eat your fruits and vegetables and stay hydrated.  Looking forward to your next update.

  5. I am so glad that you recognize the importance of taking care of Krissy, too!  Thanks for the address!  I will be thinking of both of you eeryday...tell John to stay strong, and you do so, too!  Love JAE

  6. yes Krissy, I agree...that alone time is crucial for both you and John.   And as for what you can do for him, your support is probably one of the main things that keeps his attitude so positive.  I'm sure you're a terrific cheerleader!  

  7. I hope both of you are doing as good as can be expected.   I like what you said about John living moment by moment.   The more expectations I have about the future, the more I tend to worry.   My health at the moment is fair, and I have a lump removal scheduled for my left shoulder on Feb. 2.   I am spending my time laying on my board and cushion reading.   I have had to stop working on the construction activity on my home as it is too stressful for me.   I have been doing sit ups to help strenghten my back, and it relieves some of the sharp pain that I get from my spine.    I had to stop doing dumbbell exercises because I believe it has caused fluid to leak from the sack of the lypoma in my shoulder.   The fluid makes me feel sick and I want it to be closed for the removal.   I take Salty for walks and try to walk at least a mile a day.   Just thought you might like to read about what is going on with me and know that I am praying for John and you.
    Hoping for bright spots during the day and positive feelings,    mark

  8. Glad it is all going so well Krissy and yes, you do need your breaks, both of you.  Have made a note of the address.

  9. Krissy so pleased everything is going well....thanks for the address...Big Hugs for you both....Ally

  10. Krissy,   My prayers are with you both.   I think you are wise to take a little time for yourself as you are dealing with as much stress as John.  Stay strong and keep your faith in the Lord.          Dawn

  11. Hi Krissy!

    I finally got in.  Darrell had me turn Panda off, and it worked.

    My friend has a chest port for her chemo treatments.  Sometimes it gets sensitive around the spot.  It looks like an old fashioned bottle cap under her skin.  I think it's doing ok now though.

    Take care of yourself too, you need your strength.  If you have time check out my website I sent you by email.  It's helped me a great deal!

    Is Penny your Johns mother?   Or is Penny John Scalzi's mother?????  I'm so confused!!!!!!!

    Take Care      God Bless You Both!

  12. Thanks for the update.  (((((((((HUGS))))))))

    Sounds like things are coming along and you two are dealing well.  Praying for his health and full recovery.

    Much Love,

  13. Hi Krissy, firstly thanks for the address.  I`m pleased to hear that things are going well for you both now. Thinking of you both,

    Love and blessings

    Sandra xxxx

  14. Hello Krissy, good to hear from you. Thinking of you both; sending sackfuls of hugs for you and truck loads of get well wishes for John. Thanks so much for the address. Take care of yourself my friend.
    Lots of love
    Sylvia xxxxx

  15. Glad to have the update.  

  16. (((((hugs, prayers, & lots of love))))) to you both.


  17. I think John needs you as his cheerleader! I also recognise that you both need some time off from each other, it makes it easier for you when you're fighting this. I'm praying for you both at this time, I can't imagine what it must be like for you. Jeannette.

  18. I wish I could have a starbucks coffee with you Krissy.Yes,John does need alone time and so do you so dont feel guilty.You need to be well to look after John.God Bless you both x x

  19. Glad to hear you are getting settled.  Sounds like you are both doing as well as can be expected.  I'm sending prayers and positive thoughts.

  20. Krissy and John - I am sending many prayers and much love to you.  I am so glad that you can get on a computer!  I will send a card to John very soon!

    Be well,

  21. ((((( thinking of you both )))))
    Sara   x

  22. Krissy~It's good to take those breaks--healthy to get revivied a bit. Glad so far so good. Prayers will continue for John--esp. Friday & for you to keep strong..God's richest blessings to you both, Sassy 0;-)

  23. I'm glad to hear things are going well. Yes, you both need some alone time.  I'm sure John needs his rest too !  I'll be checking back to see what's new and will be praying as always !  'On Ya' - ma