Friday, January 6, 2006

highs and lows

I'm pretty tired.  We got back from Hershey tonight, a few hours ago.  Yes, we went today, as well as yesterday.  John went yesterday for an appointment and tests.  And because John's local oncologist never set up the tests John needed locally, Hershey asked him to come back today too.  So it was two days at Hershey (Thursday and Friday).  This was difficult because it was six hours driving time a day, with a full day of appointments and tests.

It has also been exhausting emotionally.  On Thursday (yesterday), Todd, the nurse coordinator met with John and told him he had a date to enter the hospital for his transplant.  He told him it was Wednesday, January 11th (this Wednesday coming up).  He was to enter the hospital on the 11th, get the chest port (central line) put in, and begin chemo.  After several days of chemo he was to have the transplant.  Wow!   January 11th.  After hearing that, we were in a state of, well, part shock, and well, part being very happy, because a date was finally picked, and there would be no more indecision and waiting. 

Well, this morning, we got up at 3:30 AM, got back on the road, and came up to Hershey again.  The first test was very early in the morning.  Talk about tired, I was exhausted.  Getting home late yesterday and going so early this morning was so tiring.  Anyway, John's final test was at 3:00 PM.  He was taking a Pulmonary Function test when Todd walked in.  "Hi Mr. Knox," he said when John was finished.  John looked at him.  "Things have changed," said Todd.  "The donor is sick.  I can't tell you what it is, but let's just say this is flu season, and it is not unusual for somebody to get flu this time of year." 

"I don't know if this is good or bad," said John.  He was thinking that this would give him more time to get ready, and to do things that needed to get done; on the other hand, he was all prepared in his mind to go in the hospital.  "It is indifferent," said Todd.  Todd told him the hospital entry date will nowbe pushed later into January a week or two.  That pushes the transplant back.  Todd told him that he would call John at least a week before he is to enter the hospital.  So now we are back to another waiting game.

Wow, highs and lows in a two day period.  But it is ok, because this will give us more time to get things done.  At least we know this donor exists and he is willing to participate.  Please pray for the donor, that he get well soon, and for whatever needs he may have in his life.

That's about it.  Love you all, Krissy :)       


  1. I do hope your donor will soon be well. It must be awful when you've psyched yourself up but as you say, you have longer now to prepare. Praying it will all go right for you and John. Love Jeannette.

  2. WOW Krissy!
    You did have two days filled with highs and lows.The delay in John's bone marrow transplant must be bittersweet for you.  On one hand it gives you guys some more time to get what ever needs to be done taken care of.  On the other hand, I would want this over and done with.Two wees is only two wees, right?  Nope it's an eternity.

    I will be putting the donor on my prayer list.  I will also include him in my prayer journal

    I'm sending loads of hugs and prayers your way.

    Blessings, Lu

  3. just sent you an email about this, Krissy. It will give you more time to prepare.

    Got to feel a bit for poor Todd. Imagine having to deliver news like this to people hopeful for the date of surgery.

    Will keep you all in my prayers.


  4. Will continue to pray that everything goes as it should.

  5. wow rest both of you and you both and the donor are in my prayers


  6. Things tend to happen for a reason.... Maybe someone thought you needed a couple more days to get all your little ducks in a nice neat row :)    Good thoughts being sent out to the amazing person who has volunteered to be a donor AND to the both of you!

  7. Krissy my prayers are with you all......Ally

  8. Krissy,
    I know what it is like-the ups and the downs-and it stinks.  Somehow, just keep trusting that God knows what is best.  I will keep praying!

  9. Krissy, my thoughts and prayers are with you, and may the donor recover quickly.  Take care both of you. :o)


    Sandra xxxx

  10. I hope the donor recovers quickly, poor thing.  Thinking of you both.
    Sara   x

  11. What a busy couple of days it's been.  Prayers for you & John, the donor, that it will all work out soon.  

  12. Thinking of you both. My heart goes out to you. Try to use this time to get some rest Krissy.
    Sylvia xx

  13. I'm sorry about the trouble you two have had.  Your fortitude and courage is a model for me to follow.  I'm still praying and thinking of you often.  Remember to look at the small things that brighten up any day, especially when you are exhausted.  Like a sunrise, when you have to get up and drive at 3:30am.  
    Cheers! :-)!!

  14. Prayers for you, John and the dnor....hope things get moving and happening for you soon..................Kasey

  15. This is all incredible.  I will keep you all in my prayers.  Hope you get some rest.

  16. Krissy,

    Many prayers are on the way for you and John and the donor.  And love - lots of love too.

    be well,

  17. Sweetie, we are praying for you day and night and will continue to do so.  We will definitely add the donor's health to the prayers.  It must be an emotional roller coaster for you both.  We love you, Rob, Penny and Andrea

  18. Krissy~ Wishing John a belated Happy Birthday! Sending HUGS cuz the waiting is tough and seems so common with hospital procedures. My Mom missed my son's wedding becuase of that very thing...You're ready and then you wait...Sending prayers for tolerance with that and patience--also extra hugs for all the exhaustion! God Bless U both~xox Deb

  19. Yup, definite highs and lows on your rollercoaster.  But hang in there, my dear, you're doing great!  We want this donor as healthy as can be.
    Your personal cheering squad,

  20. You both are in my prayers friend.  

  21. I'm on edge with anticipation along with you, Krissy. Will be keeping up & thinking of you, John, and the beloved donor. I'll keep all of you in prayer. Keep in touch.


  22. I'll be praying for all fo you. You, John and the donor.  May our dear Lord bless you all !  'On Ya '- ma

  23. My thoughts and prayers are with your both.


  24. and hope the donor gets better and pray for you two too