Hi! Here to say that John is doing oh so much better. One of the reasons is a little pill called Cellcept that John has been taking . It fights off Graft Verses Host Disease. What is GVHD? It is when the donor cells see your body as an intruder, and they attack it. I just asked John, and that is the definition he gave me.
So John has been going to "day hospital" each day. There he has been getting an antibiotic called Vancomycin. That helps tremendously too. It will prevent him from getting any infections, or from getting his other infection back. At first the hospital was going to have me administer the IV myself to John at Hope Lodge (each day until the fourteenth), but they changed their mind, thank God. They were going to send somebody from "Critical Care" to come to Hope Lodge to show me how to do it. In the end they decided to do it at day hospital instead. Boy am I glad for that! I am NOT a nurse. At day hospital they also do a lot of other things, and we get out some time in the afternoon. It is not too bad. We are out of there usually at the latest by 3 PM, and we have the rest of the day free.
John has been getting stronger everyday. There has been an occassional day where he was so tired I have had to push him in a wheelchair at the hospital, but there have been others where he is able to walk around the hospital, and all around that day! Today was one of those good days. He did very well! He didn't even sleep all day, he was out of bed part of the day. He is so strong.
John started losing his hair yesterday. Or was it the day before. We had shaved him bald in anticipation of it falling out before he came to Hershey, but it had already grown back, as it grows fast. We thought he was going to keep it. Then 21 days after chemo started, it just started to fall out allover his pillow. So, because it was making such a mess, and was only there in patches , we got out the electric razor, and once again made him a baldie. I will have some pics to add later on. I can't add them yet, because I can't put them on this computer, but I will do it on mine when I get home.
Home. Someday we will get home. My real home. Where I can sleep in my own bed. And see my kitty. And my Dad and Mom and Valerie.
So what's been going on with me? I have been alright. Some days are easier than others. A few days ago I felt a little overwhelmed. A psychiatrist that was checking in on John at day hospital told me I needed to take a "caregiver's break" and asked me who I had reserved to fill in for me. I just about burst into laughter. I told him "no one". Who would I get to relieve me? Val has had a chest infection or something and there was no one else to take my place in taking care of John. So Dr. Neuri told me not to worry, that I would make it, to just hang in there.
The next day I was able to pull myself together and am now doing just fine. As a matter of fact, John and I are having some fun when we get back from day hospital. Days are not as long as when we were at the regular hospital. We can come back to Hope Lodge and rest. Yes, I am responsible totally for his care at Hope Lodge, with no nurses to help, but he is doing so much better. So at night we just rest a lot. And we have been watching the Olympics. And just laying around, lol. Don't get me wrong, there are a lot of chores to do, but I am making sure I am pacing myself.
Well, I gotta run now. John says "Hi" to everyone, and thanks for the cards. Love ya, Krissy :)